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TassieTiger

Member since Aug 2020 • Last active Sep 2020
  • 1 conversations
  • 10 comments

Most recent activity

  • in Bangle.js
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    Ok, most recent changes put the accelerometer into standby if it's not moving for 1 minute.

    Tagging @Graham_Jones in case this affects your app porting.

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    @al I realise this topic is quite old and your circumstances may have changed over that time, however you may be interested in this related topic:

    http://forum.espruino.com/conversations/­351912/

  • in Projects
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    Thanks @Graham_Jones and @Gordon

    Looks very promising. Great collaboration.

  • in Projects
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    Have added requests to the features list post above.

  • in Projects
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    I was thinking of some possible additional optional features:

    • some people (approx 20%) who have seizures have prewarning with signs such as aura, etc - not sure if heart rate is one of the prewarning signs but it might be:
      perhaps an option to capture heart beat data for some period of time in a rolling log, eg. last 5 minutes prior to seizure to compare to heart beat data immediately prior to seizure with aim to see if change of heart rhythm can be used to warn of oncoming seizure to allow sufferer to get themselves to a safe area, lay down and inform others in the area
    • can watch play a prerecorded audio message during seizure with words for example of 'seizure occuring, please protect my head, do not restrain me, lay me on my side, phone ambulance, reassure me when I regain consciousness'? Would be useful for bystanders who have never witnessed a seizure/think the person is on drugs/drunk
    • medical staff always ask how long did the seizure last; carers, at least for the first few seizures are unlikely to time a seizure, or there might be no-one to witness the seizure. App could time the convulsions.
    • Sudden Unexpected Death in Epilepsy (SUDEP). Most, but not all, cases of SUDEP occur during or immediately after a seizure. Possible factors are breathing and heart rhythm or combination of the two.
      Breathing: A seizure may cause a person to have pauses in breathing (apnea). If these pauses last too long, they can reduce the oxygen in the blood to a life-threatening level. Many sports/smart watches can monitor blood oxygen levels. Watch could send the phone data and phone then raises alarm/Recording to play message saying 'Possible airway blockage, please check when safe, perform CPR etc.' along with optional message to carers phone.
      Heart rhythm: A seizure may cause a dangerous heart rhythm or cardiac arrest.
      Watch could send phone data and alarm/Recording to play message saying 'Check pulse, possible heart problems etc.'
      along with optional message to carers phone.
      In the unfortunate cases where a life might not be saved even with the features implemented, the data, if available, could show medical staff, carers and family more certainty as to the cause of death.

    @Graham_Jones I realise you started the project due to the needs of your son. Some of the features requested may not fit his current needs, they may fit more for adolescents and older when they become more independent - which is another level of worry for family carers when they venture out more.

    Potentially this project could be the first 'citizen medicine' equivalent of citizen science projects, especially if anonymous data is shared to help drive accuracy in seizure detection and combined with other data, perhaps for some, warning of potential forthcoming seizure.

  • in Projects
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    Brilliant! Thank you @Gordon and @Graham_Jones

    Wishing this project all the success it deserves for an outcome that may bring some level of relief for so many families affected.

  • in Projects
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    Thanks @Gordon

    From looking at GitHub
    http://microco.sm/out/Hvvgi
    the Android phone app part is done, just the watch code requires porting as there are separate reps for the Android app, Pebble watch and Garmin device.

    Hopefully someone with the skills might pick this up as it would certainly help the community and families affected by epilepsy.

    Around 50 million people worldwide have epilepsy, making it one of the most common neurological diseases globally. Source: WHO website

    A cheaper phone app would probably also useful for those prone to non epileptic seizures, elderly that are prone to falls, fainting etc.

  • in Projects
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    I have found an open source one for Pebble (seems like old hardware) and Garmin; perhaps the software could be ported over or at least used as a base to find required parameters and options:
    https://github.com/OpenSeizureDetector

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